The Delhi High Court has directed the Union Government to establish the National Fund for Rare Diseases (NFRD). What are rare diseases? What are the government policies for rare diseases? Take a look.

The University of Minnesota’s annual Rare Disease Day seminar this year, held at the end of February, explained how patients with rare diseases can utilize telehealth services nationally and ...

While PH Awareness Month is a great opportunity to connect and educate, rare disease advocacy is columnist Jen Cueva's passion all year.

“Rare diseases are a significant challenge for tribal citizens ... we hope to empower our people and ensure they have access to the care and resources they need.” The day-long summit will feature a ...

A WOMAN has revealed her rare condition which makes her “faint” whenever she laughs, cries or is hungover – and once almost ...

A Plymouth woman faces an unusual and life-threatening condition that makes exercising a potentially deadly activity for her.

CHASERR is unlike traditional genes, which are used as blueprints for making messenger RNA and proteins that perform various functions in cells. Instead, CHASERR codes for a long noncoding RNA, or ...

Chelsea Coombes first realised something was wrong when she was 17 years old and felt her face drop after she laughed ...

As the risk for brush fires remains high throughout the region, a rare round of precipitation could help improve ...

I told them that she can’t walk right now but hopefully one day she will, and that we can show people kindness ... forward ...

In 2021, the Government of India established Centres of Excellence (CoEs) under the National Policy for Rare Diseases to ...

Patients with rare diseases in India, like Saifullah Khalidi with spinal muscular atrophy (SMA), struggle to afford ...